CP en indicatiestelling - lijst met bronnen

  • Alschuler, K.N., Jensen, M.P., Sullivan-Singh, S.J., Borson, S., Smith, A.E., & Molton, I.R. (2013). The association of age, pain, and fatigue with physical functioning and depressive symptoms in persons with spinal cord injury. The Journal of Spinal Cord Medicine, 36(5), 483–491. https://doi.org/10.1179/2045772312Y.0000000072
  • Bendt, M., Gabrielsson, H., Riedel, D., Hagman, G., Hultling, C., Franzén, E., Eriksson, M., & Seiger, Å. (2020). Adults with spina bifida: A cross-sectional study of health issues and living conditions. Brain and Behavior, 10(8), e01736. https://doi.org/10.1002/brb3.1736
  • Benner, J L., Hilberink, S.R., Veenis, T., Stam, H.J., van der Slot, W.M., & Roebroeck, M.E. (2017). Long-Term Deterioration of Perceived Health and Functioning in Adults With Cerebral Palsy. Archives of Physical Medicine and Rehabilitation, 98(11), 2196–2205.e1. https://doi.org/10.1016/j.apmr.2017.03.013
  • Benner, J.L. (2020). Consequences of aging in cerebral palsy. Core outcomes of health, activities and participation. Rotterdam: Erasmus Medical Centre Rotterdam.
  • Brunton, L.K., McPhee, P.G., & Gorter, J.W. (2021). Self-reported factors contributing to fatigue and its management in adolescents and adults with cerebral palsy. Disability and Rehabilitation, 43(7), 929–935. https://doi.org/10.1080/09638288.2019.1647294
  • den Draak, M., & van der Ham, L. (2018). Gemeenten over de uitvoering van de Wet maatschappelijke ondersteuning 2015: het glas is halfvol én halfleeg. Tijdschrift voor Gezondheidswetenschappen, 96, 348-353. https://doi.org/10.1007/s12508-018-0207-1
  • de Veld, A., Lemette, M., & Heijsman, A. (2021). Adviseren door ergotherapeuten, ergotherapeutische adviesmethodiek. Tweede druk. Amsterdam: Boom. ISBN: 9789024429332.
  • DiPiro, N.D., Murday, D., Corley, E.H., & Krause, J.S. (2022). The primary and secondary causes of hospitalizations during the first five years after spinal cord injury. Spinal Cord, 60(6), 574–579. https://doi.org/10.1038/s41393-022-00750-9 /li>
  • Donders W. (2015). Praktische gespreksvoering. Den Haag: Boom Lemma.
  • Eliasson, A.C., Krumlinde-Sundholm, L., Rösblad, B., Beckung, E., Arner, M., Ohrvall, A.M., & Rosenbaum, P. (2006). The Manual Ability Classification System (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Developmental Medicine and Child Neurology, 48(7), 549–554. https://doi.org/10.1017/S0012162206001162
  • Hidecker, M.J., Paneth, N., Rosenbaum, P.L., Kent, R.D., Lillie, J., Eulenberg, J.B., Chester, K., Jr, Johnson, B., Michalsen, L., Evatt, M., & Taylor, K. (2011). Developing and validating the Communication Function Classification System for individuals with cerebral palsy. Developmental Medicine and Child Neurology, 53(8), 704–710. https://doi.org/10.1111/j.1469-8749.2011.03996.x
  • Hilberink, S.R. (2021). Tussen – Over levenslange en levensbrede ondersteuningsbehoeften. Rotterdam: Hogeschool Rotterdam Uitgeverij. ISBN: 9789493012141.
  • Kemp, B.J. (2005). What the rehabilitation professional and the consumer need to know. Physical Medicine and Rehabilitation Clinics of North America, 16, 1-18.
  • Leget, C. (2017). Sympathie, empathie en compassie. Bijzijn XL 10, 11. https://doi.org/10.1007/s12632-017-0055-2 
  • Maister, D.H., Green, C.H., & Galford, R.M. (2015). De vertrouwde adviseur. Schoonhoven: Academic Service. ISBN: 9789462201293.
  • Noten, S., Troenosemito, L.A.A., Limsakul, C., Selb, M., de Groot, V., Konijnenbelt, M., Driessen, D.M.F., Hilberink, S.R., Roebroeck, M.E., & ICF Core Set for Adults with Cerebral Palsy Study Group (2021). Development of an ICF Core Set for adults with cerebral palsy: capturing their perspective on functioning. Developmental Medicine and Child Neurology, 63(7), 846–852. https://doi.org/10.1111/dmcn.14841
  • Opheim, A., Jahnsen, R., Olsson, E., & Stanghelle, J.K. (2009). Walking function, pain, and fatigue in adults with cerebral palsy: a 7-year follow-up study. Developmental Medicine and Child Neurology, 51(5), 381–388. https://doi.org/10.1111/j.1469-8749.2008.03250.x
  • Pangalila, R.F., van den Bos, G.A., Bartels, B., Bergen, M., Stam, H.J., & Roebroeck, M.E. (2015). Prevalence of fatigue, pain, and affective disorders in adults with duchenne muscular dystrophy and their associations with quality of life. Archives of Physical Medicine and Rehabilitation, 96(7), 1242–1247. https://doi.org/10.1016/j.apmr.2015.02.012
  • Palisano, R.J., Rosenbaum, P., Bartlett, D., & Livingston, M.H. (2008). Content validity of the expanded and revised Gross Motor Function Classification System. Developmental Medicine and Child Neurology, 50(10), 744–750. https://doi.org/10.1111/j.1469-8749.2008.03089.x
  • Santiago-Lastra, Y., Cameron, A.P., Lai, J., Saigal, C., Clemens, J Q., & Urologic Diseases of America Project (2019). Urological Surveillance and Medical Complications in the United States Adult Spina Bifida Population. Urology, 123, 287–292. https://doi.org/10.1016/j.urology.2017.08.046
  • Silverberg, J.I., & Hanifin, J.M. (2013). Adult eczema prevalence and associations with asthma and other health and demographic factors: A US population–based study. Journal of Allergy and Clinical Immunology, 132(5), 1132-1138. https://doi.org/10.1016/j.jaci.2013.08.031
  • Schmidt, A.K., van Gorp, M., van Wely, L., Ketelaar, M., Hilberink, S.R., Roebroeck, M.E., & Perrin-Decade Pip Study Groups (2020). Autonomy in participation in cerebral palsy from childhood to adulthood. Developmental Medicine and Child Neurology, 62(3), 363–371. https://doi.org/10.1111/dmcn.14366
  • Shearer, H.M., Côté, P., Hogg-Johnson, S., Mckeever, P., & Fehlings, D.L. (2022). Pain trajectories and well-being in children and young people with cerebral palsy: A cohort study. Developmental Medicine and Child Neurology, 64(11), 1416–1424. https://doi.org/10.1111/dmcn.15252
  • Silverman, J., Kurtz, S., & Draper, J. (2014). Vaardig communiceren in de gezondheidszorg. ISBN: 9789462363595.
  • Stadskleiv, K., van Walsem, M.R., Andersen, G.L., Bergqvist, L., Bøttcher, L., Christensen, K., Heyerdahl, D., Hollung, S.J., Høye, H., Jahnsen, R., Klevberg, G.L., Lindquist, B., Passmark, H., Rike, P.O., Rodby-Bousquet, E., & Alriksson-Schmidt, A.I. (2021). Systematic Monitoring of Cognition for Adults With Cerebral Palsy-The Rationale Behind the Development of the CPCog-Adult Follow-Up Protocol. Frontiers in Neurology, 12, 710440. https://doi.org/10.3389/fneur.2021.710440
  • van der Molen, H.T., Hommes, M.A., & Kluijtmans, F. (2015), Gespreksvoering, Basisvaardigheden en gespreksmodellen. Vierde druk. Houten: Noordhoff uitgevers Groningen.
  • van der Slot, W.M.A., Benner, J.L., Brunton, L., Engel, J.M., Gallien, P., Hilberink, S.R., Månum, G., Morgan, P., Opheim, A., Riquelme, I., Rodby-Bousquet, E., Şimşek, T.T., Thorpe, D.E., van den Berg-Emons, R.J.G., Vogtle, L. K., Papageorgiou, G., & Roebroeck, M.E. (2021). Pain in adults with cerebral palsy: A systematic review and meta-analysis of individual participant data. Annals of Physical and Rehabilitation Medicine, 64(3), 101359. https://doi.org/10.1016/j.rehab.2019.12.011
  • van Gorp, M., van Wely, L., Dallmeijer, A. J., de Groot, V., Ketelaar, M., Roebroeck, M.E., & Perrin-Decade study group (2019). Long-term course of difficulty in participation of individuals with cerebral palsy aged 16 to 34 years: a prospective cohort study. Developmental Medicine and Child Neurology, 61(2), 194–203. https://doi.org/10.1111/dmcn.14004
  • van Gorp, M., Hilberink, S.R., Noten, S., Benner, J.L., Stam, H.J., van der Slot, W.M.A., & Roebroeck, M.E. (2020). Epidemiology of Cerebral Palsy in Adulthood: A Systematic Review and Meta-analysis of the Most Frequently Studied Outcomes. Archives of Physical Medicine and Rehabilitation, 101(6), 1041–1052. https://doi.org/10.1016/j.apmr.2020.01.009
  • van Heijningen, V.G., Cardol, M., van Heijningen-Tousain, H.J.M., Oosterveer, D.M., van Markus-Doornbosch, F., Sattoe, J.N.T., van der Holst, M., & Hilberink, S.R. (2021). Aging With Cerebral Palsy: A Photovoice Study Into Citizenship. Frontiers in Neurology, 12, 729509. https://doi.org/10.3389/fneur.2021.729509
  • Veenboer, P.W., Procee, A.I., Verheijden, J.M., Bosch, J.L., van Asbeck, F.W., & de Kort, L.M. (2014). Medical and psychosocial problems in middle-aged spina bifida patients: survey among members of the Dutch patients' association. Disability and Rehabilitation, 36(7), 539–545. https://doi.org/10.3109/09638288.2013.801522
  • Verschuren, O., Benner, J.L., Balemans, A.C.J., Horemans, H., van den Berg-Emons, R.J.G., & van der Slot, W.M.A. (2022). Real-time daily fatigue, sleep, physical activity, and health-related fitness in adults with cerebral palsy. Developmental Medicine and Child Neurology, 10.1111/dmcn.15421. Advance online publication. https://doi.org/10.1111/dmcn.15421
  • Whitney, D.G., Kamdar, N.S., Ng, S., Hurvitz, E.A., & Peterson, M.D. (2019). Prevalence of high-burden medical conditions and health care resource utilization and costs among adults with cerebral palsy. Clinical Epidemiology, 11, 469–481. https://doi.org/10.2147/CLEP.S205839
  • Whitney, D.G., Warschausky, S.A., Ng, S., Hurvitz, E.A., Kamdar, N.S., & Peterson, M.D. (2019). Prevalence of Mental Health Disorders Among Adults With Cerebral Palsy: A Cross-sectional Analysis. Annals of Internal Medicine, 171(5), 328–333. https://doi.org/10.7326/M18-3420
  • https://cpnederland.nl/betekenis-cerebrale-parese/
  • https://canchild.ca/system/tenon/assets/attachments/000/000/067/original/GMFCS-ER_Translation-Dutch.pdf
  • https://www.mee.nl/clientondersteuning
  • https://www.wijencp.nl/cplight/
  • https://wetten.overheid.nl/
  • https://www.regelhulp.nl/onderwerpen/clientondersteuning
  • https://www.regelhulp.nl/onderwerpen/clientondersteuning/clientondersteuning-via-zorgkantoor
  • https://www.regelhulp.nl/onderwerpen/ondersteuning/wetten
  • https://www.regelhulp.nl/onderwerpen/verpleging-en-verzorging-voor-jeugd/welke-wet
  • https://www.zorginstituutnederland.nl/Verzekerde+zorg/fysiotherapie-Wet-langdurige-zorg/documenten/standpunten/2016/01/07/standpunt-paramedische-zorg-in-de-Wlz
  • https://wijrollen.nl/artikelen/waar-heb-je-eigenlijk-recht-op-als-gehandicapte-ouder/

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